Is this over?
MY IV PORT WAS REMOVED YESTERDAY.
But let me back up a little bit. The past few weeks I have been getting better and better and getting my strength back. I can't believe that this treatment is over. Only time will tell if I have been "cured."
Around Aug. 30 (one week after my last treatment), I had a fever of 102 and had to be admitted to the hospital. My white blood counts (and red for that matter) had taken a nose dive. After going to the hospital, no one even came in my room for 1 hour. And I asked for water 3 times and was always given an excuse as to why I never got it.
To make matters even worse, tornadoes were touching down in GA (what was left of Katrina was passing through) and all patients had to move to the hallway. I was under special precautions due to my low white blood counts but most of the nurses were not even following them.
The next day, my fever was back to normal, but they said they wanted to keep me there for another 3 days. Imagine undergoing all this treatment, finally being done, and then finding yourself BACK in the hospital. I told them I was leaving and basically just walked out of the hospital.
I called my doc and I thought he would be shocked and outraged but instead he just told me to stay at home and get some rest.
I had a CBC last week and my platelets and white cells have returned to normal. Red cells are still a little low but should gradually return to normal. Only problem I have now is my fingertips are still numb (that could take up to 1 year to get back to normal) and my hair still hasn't grown back yet.
Yesterday was the BIG DAY--having that IV port that was implanted in my arm removed. They made a 2nd incision to take it out, so I will now have 2 scars on my left arm. It's a little sore but that should go away in a few days. I'm making sure that this time I move my arm from time to time so it doesn't lock up like it did when I had the port put in.
What a summer. I still can't believe this is all over. I can't believe how sick I was at times. It's as if the month of May started and now I wake up and it's the end of Sept.
My next doctor's appointment isn't until November. I may update the blog on my progress from time to time. But now that treatment is over there will not be much to write. That's one of the best things I could ever be able to say.
But let me back up a little bit. The past few weeks I have been getting better and better and getting my strength back. I can't believe that this treatment is over. Only time will tell if I have been "cured."
Around Aug. 30 (one week after my last treatment), I had a fever of 102 and had to be admitted to the hospital. My white blood counts (and red for that matter) had taken a nose dive. After going to the hospital, no one even came in my room for 1 hour. And I asked for water 3 times and was always given an excuse as to why I never got it.
To make matters even worse, tornadoes were touching down in GA (what was left of Katrina was passing through) and all patients had to move to the hallway. I was under special precautions due to my low white blood counts but most of the nurses were not even following them.
The next day, my fever was back to normal, but they said they wanted to keep me there for another 3 days. Imagine undergoing all this treatment, finally being done, and then finding yourself BACK in the hospital. I told them I was leaving and basically just walked out of the hospital.
I called my doc and I thought he would be shocked and outraged but instead he just told me to stay at home and get some rest.
I had a CBC last week and my platelets and white cells have returned to normal. Red cells are still a little low but should gradually return to normal. Only problem I have now is my fingertips are still numb (that could take up to 1 year to get back to normal) and my hair still hasn't grown back yet.
Yesterday was the BIG DAY--having that IV port that was implanted in my arm removed. They made a 2nd incision to take it out, so I will now have 2 scars on my left arm. It's a little sore but that should go away in a few days. I'm making sure that this time I move my arm from time to time so it doesn't lock up like it did when I had the port put in.
What a summer. I still can't believe this is all over. I can't believe how sick I was at times. It's as if the month of May started and now I wake up and it's the end of Sept.
My next doctor's appointment isn't until November. I may update the blog on my progress from time to time. But now that treatment is over there will not be much to write. That's one of the best things I could ever be able to say.
posted by Robbie at 1:25 PM
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